Blog

What to Know About EE’s Rachel Levin? 22 Fun Facts

Posted by on Sep 23, 2014 in Blog, Emily's Entourage Blog | 0 comments

We wanted to learn a little more about the first-ever Emily’s Entourage staff person, Rachel Levin, so we chatted with her about some of her favorite things and stories. We asked Rachel to share 22 facts about herself to share what keeps her going, outside of her quest for a cure! My hometown is: Philadelphia, Pa My siblings are: One older brother, Andy My first job was: Slicing Lox behind the deli counter at Murray’s Baederwood My worst subject in school was: Linear algebra in college....

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Big News: Emily’s Entourage hires first staff member!

Posted by on Sep 23, 2014 in Blog, Emily's Entourage Blog | 0 comments

We have to fill you in on some exciting news! Over the past year, a small task force of EE board members, volunteers and a professional consultant met to discuss how to best structure the organization to make exponential gains going forward in the future. One of the big recommendations was to hire our first paid staff person. Our next challenge was to find someone who was enthusiastic about our cause, motivated to help, and interested in the position. That’s when fate stepped in… Without...

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Join Team EE in the 2014 Philadelphia Marathon

Posted by on Sep 21, 2014 in Blog, Emily's Entourage Blog | 0 comments

Emily’s Entourage is thrilled to be an official charity partner of the 2014 Gore-tex Philadelphia Marathon! We still have a few spots open on the team for either the Full or Half Marathon and would love you to run with us on Sunday November 23rd! Additional benefits of joining Team EE: Pre-race dinner with the team Emily’s Entourage race tank and goodie bag Team meet up at a start/finish line area with refreshments Enthusiastic and incredibly grateful EE cheering squad on race day...

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Where in the World is Emily of Emily’s Entourage?

Posted by on Sep 18, 2014 in Blog, Emily's Entourage Blog | 0 comments

Where in the world is Emily?? That’s the question we were asking ourselves all week! It seems like lately there’s never a dull moment, and this week was certainly no exception! On Monday, Emily was in Washington, DC where she was a plenary speaker at the 4th Annual Consumer Health IT Summit! The conference was sponsored by the Office of the National Coordinator for Health Information Technology, of the U.S. Department of Health and Human Services. It highlighted efforts to advance...

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How Emily’s CF Journey Changed My Perspective on Health

Posted by on Aug 12, 2014 in Blog, Emily's Entourage Blog | 0 comments

We are thrilled to share a blog post from Bea Abbott, a close friend of Emily’s and the entire Kramer-Golinkoff family, as well as a special source of support and spirit for all of us at Emily’s Entourage! Thanks, Bea!   I am 22 and in college, and like most 20 somethings, I recently had my wisdom teeth out. I know, everybody does it and rarely does anything ever go wrong but nonetheless I was terrified. Though my seldom health issues, if I can even call them that, have...

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George Washington University Blog Features Emily’s Entourage TEDMED Great Challenges Discussion

Posted by on Jul 15, 2014 in Blog, Emily's Entourage Blog | 0 comments

Emily’s Entourage was thrilled to be featured in a blog post recapping Emily’s recent TEDMED Great Challenges discussion. The post enables Emily and her fellow panelists’ to share their important message about how to best cultivate and assess patient engagement with a greater audience, and we are excited to share it with you here! Below is a guest blog post from Emily Newhook, community relations manager for the Executive Master of Health Administration program at the Milken Institute School...

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