Blog

Third Annual Evening with Emily’s Entourage Silent Auction

Posted by on Dec 9, 2014 in Blog, Emily's Entourage Blog | 0 comments

We are incredibly excited for our gala event THIS SATURDAY and we wanted to give you just a little taste of what our amazing silent auction has to offer! There truly is something for everyone and this year’s auction items span an even wider range of price points, products, and entertainment events. Come ready to bid on your favorites! For the experience seeker… • Tickets to The Daily Show with Jon Stewart • Tour of the Today Show • Dinner for 6 prepared by chef Hope Cohen • Private tour...

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#GivingTuesday: A Day for Giving Back and Looking Forward

Posted by on Dec 2, 2014 in Blog, Emily's Entourage Blog | 0 comments

#GivingTuesday is a global day dedicated to giving back by paying it forward. Here at EE, we feel indescribably grateful for an Entourage that exudes the giving spirit and reminds us of the power of paying it forward every single day of the year. As we prepare to launch this year’s annual campaign with our kickoff gala on December 13, we want to take a quick look back at our exhilarating year of impact. Read below to see what WE(E) have achieved together. There is much to celebrate, but...

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Our Philadelphia Marathon Runners: Meet Team EE!

Posted by on Nov 18, 2014 in Emily's Entourage Blog | 0 comments

This Sunday, November 23, we are thrilled to have the first ever Emily’s Entourage team running in the Philadelphia Marathon. We are so proud of the incredible group of people that have been training and fundraising in support of EE. We wanted to take this opportunity to introduce you to some of the runners you will be seeing on Sunday!  Visit their individual fundraising pages to contribute to their efforts and help us find a cure for CF! GO TEAM EE!!!!!!   Lee Trope Where do you live?...

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EE’s Top 4 Reasons To Get Your Flu Shot Today

Posted by on Nov 6, 2014 in Blog, Emily's Entourage Blog | 0 comments

Have you gotten your flu shot yet? Now’s the perfect time! There’s a lot of attention on Ebola right now, and that’s certainly a serious concern, but the flu is a big deal too. The virus can kill between 3,000 and 50,000 per year in the United States alone. It is a serious threat to the community, and for vulnerable populations, including those with with Cystic Fibrosis (CF), it’s especially dangerous. So if you need a little reminder why getting your flu shot is so...

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PharmaTimes Magazine Q+A with Emily

Posted by on Oct 23, 2014 in Blog, Emily's Entourage Blog | 0 comments

“Everyone Deserves A Deep Breath” Interview originally published in PharmaTimes Magazine and available here Emily Kramer-Golinkoff was six weeks old when she was diagnosed with cystic fibrosis. She is now 29, works in the social media and health innovation lab at Penn Medicine, and has set up a charity to raise funds for CF research What is Emily’s Entourage? In December 2012, my family, friends and I founded the charity Emily’s Entourage (www. emilysentourage.org), which raises...

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What to Know About EE’s Rachel Levin? 22 Fun Facts

Posted by on Sep 23, 2014 in Blog, Emily's Entourage Blog | 0 comments

We wanted to learn a little more about the first-ever Emily’s Entourage staff person, Rachel Levin, so we chatted with her about some of her favorite things and stories. We asked Rachel to share 22 facts about herself to share what keeps her going, outside of her quest for a cure! My hometown is: Philadelphia, Pa My siblings are: One older brother, Andy My first job was: Slicing Lox behind the deli counter at Murray’s Baederwood My worst subject in school was: Linear algebra in college....

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