Emily’s Entourage Blog

Our Philadelphia Marathon Runners: Meet Team EE!

Posted by on Nov 18, 2014 in Emily's Entourage Blog | 0 comments

This Sunday, November 23, we are thrilled to have the first ever Emily’s Entourage team running in the Philadelphia Marathon. We are so proud of the incredible group of people that have been training and fundraising in support of EE. We wanted to take this opportunity to introduce you to some of the runners you will be seeing on Sunday!  Visit their individual fundraising pages to contribute to their efforts and help us find a cure for CF! GO TEAM EE!!!!!!   Lee Trope Where do you live?...

Read More

EE’s Top 4 Reasons To Get Your Flu Shot Today

Posted by on Nov 6, 2014 in Blog, Emily's Entourage Blog | 0 comments

Have you gotten your flu shot yet? Now’s the perfect time! There’s a lot of attention on Ebola right now, and that’s certainly a serious concern, but the flu is a big deal too. The virus can kill between 3,000 and 50,000 per year in the United States alone. It is a serious threat to the community, and for vulnerable populations, including those with with Cystic Fibrosis (CF), it’s especially dangerous. So if you need a little reminder why getting your flu shot is so...

Read More

PharmaTimes Magazine Q+A with Emily

Posted by on Oct 23, 2014 in Blog, Emily's Entourage Blog | 0 comments

“Everyone Deserves A Deep Breath” Interview originally published in PharmaTimes Magazine and available here Emily Kramer-Golinkoff was six weeks old when she was diagnosed with cystic fibrosis. She is now 29, works in the social media and health innovation lab at Penn Medicine, and has set up a charity to raise funds for CF research What is Emily’s Entourage? In December 2012, my family, friends and I founded the charity Emily’s Entourage (www. emilysentourage.org), which raises...

Read More

What to Know About EE’s Rachel Levin? 22 Fun Facts

Posted by on Sep 23, 2014 in Blog, Emily's Entourage Blog | 0 comments

We wanted to learn a little more about the first-ever Emily’s Entourage staff person, Rachel Levin, so we chatted with her about some of her favorite things and stories. We asked Rachel to share 22 facts about herself to share what keeps her going, outside of her quest for a cure! My hometown is: Philadelphia, Pa My siblings are: One older brother, Andy My first job was: Slicing Lox behind the deli counter at Murray’s Baederwood My worst subject in school was: Linear algebra in college....

Read More

Big News: Emily’s Entourage hires first staff member!

Posted by on Sep 23, 2014 in Blog, Emily's Entourage Blog | 0 comments

We have to fill you in on some exciting news! Over the past year, a small task force of EE board members, volunteers and a professional consultant met to discuss how to best structure the organization to make exponential gains going forward in the future. One of the big recommendations was to hire our first paid staff person. Our next challenge was to find someone who was enthusiastic about our cause, motivated to help, and interested in the position. That’s when fate stepped in… Without...

Read More

Join Team EE in the 2014 Philadelphia Marathon

Posted by on Sep 21, 2014 in Blog, Emily's Entourage Blog | 0 comments

Emily’s Entourage is thrilled to be an official charity partner of the 2014 Gore-tex Philadelphia Marathon! We still have a few spots open on the team for either the Full or Half Marathon and would love you to run with us on Sunday November 23rd! Additional benefits of joining Team EE: Pre-race dinner with the team Emily’s Entourage race tank and goodie bag Team meet up at a start/finish line area with refreshments Enthusiastic and incredibly grateful EE cheering squad on race day...

Read More