Events & Activities

Emily’s Entourage (EE) hosts events and activities throughout the year to raise funds and awareness to accelerate the research and drug development for the final 10% of the cystic fibrosis community that does not benefit from current mutation-targeted therapies. 

Evening With Emily’s Entourage Gala – Philadelphia
EE’s signature event, Evening with Emily’s Entourage, brings together hundreds of guests in support of its mission. The gala features an inspiring program with a talk by EE co-founder Emily Kramer-Golinkoff, dinner and drinks, live entertainment, and more. Learn more about the event here.

Athletic and Sporting Events
EE participates as a charity partner in major athletic events, including the Philadelphia Gore-Tex Marathon and Penn Medicine Million Dollar Bike Ride, as well as various community fitness and wellness sessions. 

Parlor Meetings
Various members of the Entourage have graciously hosted parlor meetings to introduce Emily and EE to their friends and social circles. These intimate events feature mingling, hors d’oeuvres and beverages, short, inspiring remarks, including a Q&A session, by Emily and researchers. The goal is to expand the Entourage by bringing these new members on board. We’re always looking for new hosts! 

Community Events
Throughout the year, members of EE host events around the world to raise funds and awareness among their communities to advance EE’s mission. These events include lemonade stands, golf events, races, bake sales, and more. These community events are an important way to raise awareness of EE and CF and to grow our Entourage! 

Speaking Engagements
Named a White House Precision Medicine “Champion of Change,” Emily gives keynote talks as an empowered patient advocate and founder of a disruptive, paradigm-shifting patient advocacy and research foundation. Emily has given talks at The White House, TEDx, ONC Consumer Health IT Summit, University of Pennsylvania’s Annenberg School for Communication graduation, Doctors 2.0, and Stanford University’s School of Medicine and Medicine X Conference, where she is an ePatient Advisor and member of the Precision Medicine Advisory Panel.

We’d also love to hear your ideas! Contact us by submitting a form.