News and Media

3/13/15 – Tulane University New Wave, Tulane keeps up the fight against cystic fibrosis

2/27/15 – The Philadelphia Inquirer, World Rare Disease Day: A call for earlier diagnosis and treatment

2/6/15 – Penn Medicine News Blog, Focus on Rare Diseases is Common at Penn Medicine

1/29/15 – Jewish Exponent, Emily’s Entourage Shows Up in Force

1/28/15 – Main Line Times, Emily’s Entourage ‘birthday’ gala sets new records, spurs CF research

12/11/14 – The Philadelphia Inquirer, Emily’s list

Oct 2014 – PharmaTimes Magazine, “Everyone Deserves a Deep Breath” (p. 50)

9/16/14 – Healthcare IT News, Patient story kicks off Health IT Week

9/15/14 – ONC Consumer Health IT Summit, A Patient Perspective: How Technology Has Transformed My Health and Care (Video)

Aug 2014 – Journal of General Internal Medicine, A Lesson in Participatory Research for a Rare Mutation of Cystic Fibrosis

7/16/14 – MHA@GW Blog, TEDMED #GreatChallenges: Examining the Case for Patient Activation Measures

5/15/14 – Stanford Medicine X Live!, Designing for Social Connection (Video)

5/13/14 – Just Talking Podcast, With Emily Kramer-Golinkoff

5/5/14 – The Huffington Post Blog, For Cystic Fibrosis Awareness Month, the Story of a Mother’s Fight to Save Her Daughter’s Life

4/14/14 – The Huffington Post Blog, Emily’s Entourage: College Students Rally to Cure Rare Form of Cystic Fibrosis

4/3/14 – HuffPost Live, Students Fight Cystic Fibrosis (Video)

3/14/14 – Tulane Green Wave, Former, Current Student-Athletes Rally Around Emily’s Entourage

2/28/14 – Philadelphia Inquirer, Emily’s Entourage seeks cure for rare form of cystic fibrosis

2/27/14 – The Pennsylvania Gazette, A Matter of Life and Breath

9/25/13 – Huffington Post, What Today’s Youth Can Teach Us About the Power and the Potential of New Media

6/5/13 – Fox29 Good Day, Meet the Woman Behind Emily’s Entourage (Video)

5/28/13 – Women’s Voices for Change, Liza Kramer: A Mother Who’s Made a Difference

5/23/13 – USTA Middle States Featured News, Emily’s Entourage 

4/18/13 – The Tulane Hullabaloo, Emily’s Entourage event raises campus awareness of cystic fibrosis

4/11/13 – Tulane Her Campus, Campus Cutie Special: Coby Kramer-Golinkoff on Emily’s Entourage

3/19/13 – The Annenberg School for Communication at the University of Pennsylvania Press Release, Emily Kramer-Golinkoff (C ’07), founder of “Emily’s Entourage,” to be undergraduate graduation speaker

3/7/13 – SeattleMamaDoc Blog, How To Be An Empowered Patient: Emily’s Entourage 

2/11/13 – Washington Square News, NYU Group Emily’s Entourage bands together to fight cystic fibrosis

12/4/12 – Lower Merion School District’s Photo of the Day, LMSD Students Join “Emily’s Entourage” to raise funds, support alumna

12/12/12 – Jewish Exponent, Breathing Life Into the Battle with Cystic Fibrosis

12/1/12 – CBS Philly, Hundreds to Gather for Cystic Fibrosis Fundraiser in Philly

Fall 2012 – Sigma Phil Epsilon’s SigEp Journal, Brother turns to social media to help cure cystic fibrosis

6/4/12 – Quarterlette, Emily’s Entourage

5/15/12 – sportsNOLA, Tulane’s Kramer-Golinkoff Inspired by Sister’s Battle

5/7/12 – Tulane University’s Freeman Blog, Cystic fibrosis is special cause for one Freeman student

5/7/12 – Tulane University’s New Wave Newsletter, The Insider: Students join Emily’s Entourage

4/19/12 – WDSU NewsChannel 6, Entourage Raises Money For Cystic Fibrosis (Video)

4/19/12 – WDSU NewsChannel 6,  Entourage On Mission To Raise Money For Cystic Fibrosis

12/19/11 – Lower Merion High School News, LM jr. honors sister raising funds, awareness for Cystic Fibrosis

12/19/11 – FFJD blog, FFJD Giving: Emily’s Entourage 

12/12/11 – UPenn Dueling Tampons Blog, Heartfelt story of one Penn Alum’s battle with Cystic Fibrosis

12/9/11 – NBC10 Philadelphia, Local Girl With Cystic Fibrosis is Making a Difference

12/9/11 – The Tulane Hullabaloo, Battles worth winning