Emily's Entourage

02 Dec 2014

#GivingTuesday: A Day for Giving Back and Looking Forward

#GivingTuesday is a global day dedicated to giving back by paying it forward. Here at EE, we feel indescribably grateful for an Entourage that exudes the giving spirit and reminds...

18 Nov 2014

Our Philadelphia Marathon Runners: Meet Team EE!

This Sunday, November 23, we are thrilled to have the first ever Emily’s Entourage team running in the Philadelphia Marathon. We are so proud of the incredible group of people...

06 Nov 2014

EE’s Top 4 Reasons To Get Your Flu Shot Today

Have you gotten your flu shot yet? Now’s the perfect time! There’s a lot of attention on Ebola right now, and that’s certainly a serious concern, but the flu is...

23 Oct 2014

PharmaTimes Magazine Q+A with Emily

“Everyone Deserves A Deep Breath” Interview originally published in PharmaTimes Magazine and available here Emily Kramer-Golinkoff was six weeks old when she was diagnosed with cystic fibrosis. She is now...

21 Sep 2014

Join Team EE in the 2014 Philadelphia Marathon

Emily’s Entourage is thrilled to be an official charity partner of the 2014 Gore-tex Philadelphia Marathon! We still have a few spots open on the team for either the Full or...

18 Sep 2014

Where in the World is Emily of Emily’s Entourage?

Where in the world is Emily?? That’s the question we were asking ourselves all week! It seems like lately there’s never a dull moment, and this week was certainly no...

12 Aug 2014

How Emily’s CF Journey Changed My Perspective on Health

We are thrilled to share a blog post from Bea Abbott, a close friend of Emily’s and the entire Kramer-Golinkoff family, as well as a special source of support and...

15 Jul 2014

George Washington University Blog Features Emily’s Entourage TEDMED Great Challenges Discussion

Emily’s Entourage was thrilled to be featured in a blog post recapping Emily’s recent TEDMED Great Challenges discussion. The post enables Emily and her fellow panelists’ to share their important...

27 May 2014

EE Reflects on the Past…and Looks to the Future…

As another successful CF Awareness Month comes to a close, all of us at Emily’s Entourage are taking a moment to reflect on how far we’ve come…… When we pressed...

19 May 2014

Emily’s “Bucket List” of Life Dreams

In my 29 years with CF, there are still so many things I don’t understand about this crazy disease, but if there’s one thing I’ve learned, it’s that uncertainty is...

30 Apr 2014

May is Cystic Fibrosis Awareness Month: Spread the Word

Emily’s Entourage is proud to participate in recognizing the month of May as National CF Awareness Month. This is a great time for EE to work alongside the CF community...

30 Apr 2014

Emily Answers 24 Questions About Life and CF

Emily’s Entourage is pleased to have this month as an opportunity to shine the light on CF and on our efforts to combat this devastating disease. An awareness month is...

20 Apr 2014

EE Spotlight on: Nickie Boston

Today, we are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. The goal of the “Spotlight Series” is...

08 Apr 2014

THE Emily of Emily’s Entourage Speaks at Tulane University

SPOTTED: THE Emily, of Emily’s Entourage, motivating a room full of 100+ Tulane students to get out and make a difference by choosing a path of action in their lives....

26 Mar 2014

Emily’s Tips for Cultivating Super-Patients

When it comes to managing life with a chronic illness, taking all your medications and following your treatment regimen isn’t as simple as you might think. In fact, it’s often...

23 Feb 2014

Lobs of Love: A ladies round robin doubles tournament to benefit Emily’s Entourage

On Tuesday, February 4th, we were delighted to cheer on 28 fabulous women as they demonstrated their best serves, forehands and backhands for a great cause. They participated in a...

29 Jan 2014

Emily speaks about Jewish Genetic Diseases at Har Zion Temple

On January 12th, Har Zion Temple in Penn Valley, PA presented a program entitled ‘“Fitting into Your Genes: Jewish Genetic Diseases — Data, Dilemmas and Decisions.” The discussions covered hereditary...

22 Jan 2014

Fabulous February Events for Emily’s Entourage

February is full of fitness and fun in support of Emily’s Entourage and our quest to find a cure for Cystic Fibrosis. Mark your calendars and join us for the...

08 Jan 2014

#Throwback Thursday: Some of our favorite memories with Emily!

Hello everyone! It’s Jess here, and I wanted to ask you to join me and all of EE in wishing Emily a VERY happy birthday!!! For Throwback Thursday, we wanted...

16 Dec 2013

An Evening with Emily’s Entourage: A Recap

Our second annual “Evening with Emily’s Entourage” was hosted on December 7th and we cannot begin to put into words how magical it was. We want to start by thanking...

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