Emily's Entourage

12 Dec 2018

RECAP: EE Symposium Tackles Key Hurdles and Strategies for Expedited Progress for CF Nonsense Mutations

Emily’s Entourage (EE) held its third scientific symposium, Therapeutic Development for Nonsense Mutations: The Final Frontier of CF, on September 25 at The Wistar Institute in Philadelphia, PA. The singular...

15 Nov 2018

Meet the 2018 Emily’s Entourage Champions!

It’s that time of year again! The Emily’s Entourage 2018 Champions Campaign has been working diligently to reach (and exceed!) their fundraising goal of $1,500 per team by the 7th...

02 Nov 2018

Team EE Gears Up for 25th Philadelphia Half & Full Marathon!

Emily’s Entourage (EE) is lacing up for the 25th Philadelphia Half and Full Marathon on November 17-18, 2018. After four years hosting #TeamEE at the Philadelphia Marathon, EE has reached...

18 Oct 2018

Emily’s Entourage Holds 3rd Annual Cocktail Reception at NACFC

Emily’s Entourage (EE) is hosting its 3rd Annual, invitation-only Cocktail Reception at the North American Cystic Fibrosis Conference (NACFC) on October 19, 2018 in Denver, CO. Emily and her family...

17 Sep 2018

Devoted to a Cure: Managing CF in Life and Love

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest is Sigrid Ladores, a Pediatric...

07 Sep 2018

Therapeutic Development for Nonsense Mutations: The Final Frontier of CF

Emily’s Entourage (EE) announces its third scientific symposium, Therapeutic Development for Nonsense Mutations: The Final Frontier of CF, to be held September 24-25 at The Wistar Institute in Philadelphia, PA....

27 Aug 2018

An Extraordinary Legacy: The Inaugural Zack Bassin Memorial Golf Outing

One of the most rewarding benefits of being a member of Emily’s Entourage is the chance to connect with extraordinary individuals from around the globe. Sometimes we connect with people...

18 Jul 2018

Recap: Gen Nxt Presents A Night Out With Emily’s Entourage

On June 13, 2018, Emily’s Entourage took to New York City for the third annual #EENY event: Generation Next Presents A Night Out With Emily’s Entourage. This year, EENY crossed...

11 Jul 2018

EE Awards $660K to Cystic Fibrosis Nonsense Mutations Research

Emily’s Entourage (EE) is thrilled to announce that three research grants have been awarded to an esteemed group of international researchers, amounting to a total of $660,000 to be given...

19 Jun 2018

Behind The Scenes: Why I Teamed Up With EE For A SEEcret Project

Meet guest blogger Elizabeth Phillipson-Weiner, the mastermind behind EE’s “sEEcret project.” For fear of divulging key clues, we will keep the intro brief and somewhat cryptic. Elizabeth hails from Lower...

18 May 2018

Fueled by Hope: Overcoming Challenges as a CF Patient-Scientist

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest is Miriam Figueira, a 30...

10 May 2018

Dreaming of the Day: A Look Into Life with CF

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest is Stacy Carmona, a lifelong...

01 May 2018

Fire It Up… May is CF Awareness Month!

May is National Cystic Fibrosis Awareness Month and at Emily’s Entourage, we never go dark… we’ll be spreading awareness, information and fun like wildfire! If you’ve been around the Entourage...

29 Apr 2018

9 Fresh Ways to Help EE this Spring

Looking for some fresh ways to shine a light on your commitment to Emily’s Entourage this spring? Well you’ve come to the the right place! Whether you donate in time...

28 Mar 2018

EE Launches Organoid Screening of Cystic Fibrosis Nonsense Mutation

Emily’s Entourage is proud to announce that it has awarded a one-year research grant to Jeffrey Beekman, PhD, at the University Medical Center, Utrecht, Netherlands. This grant reflects a new...

08 Mar 2018

From Arizona to Alabama: Raising Awareness For Rare Disease Week

Last week was Rare Disease Week, a special opportunity to raise critical awareness for rare disease. A disease is considered rare when it affects fewer than 200,000 people worldwide. With...

13 Feb 2018

Fall in LovEE with Emily’s Entourage: Meet Sarena

Our #FallinLovEE with EE Series continues this month, this time with longtime EE friend, volunteer, and go-to gal, Sarena Snider. As Sarena recounts how she fell in love with Emily’s...

07 Jan 2018

Happy 33rd Birthday, Emily!

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest blogger is our treasured EE...

22 Dec 2017

Recap: The 2017 Evening with Emily’s Entourage Gala

We are still floating back to earth from an otherworldly, dazzling evening that was the 2017 Evening With Emily’s Entourage! This gala—our sixth—was truly breathtaking. Anthropologie, the official 2017 Decor...

04 Dec 2017

EE Awards $1.4 Million To Research on Cystic Fibrosis Nonsense Mutations

Emily’s Entourage is proud to announce that five research grants were awarded to a dream team of investigators from around the world, amounting to a total of $1.4 Million over two...

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