Emily's Entourage

28 Nov 2017

Meet the 2017 Emily’s Entourage Champions

Cue the Rocky Theme song— because Philadelphia’s finest champions are only weeks away from hitting the ring. The Emily’s Entourage 2017 Champions Campaign has made it’s way back to Philadelphia...

10 Oct 2017

Falling in LovEE with Emily’s Entourage: Meet Pam

As sweatshirts and boots make their way out of the backs of our closets, and the leaves begin to change color, we are reminded it’s officially fall in Philadelphia,...

20 Sep 2017

New Tool in the Toolbox: Emily’s Entourage Creates Nonsense Mutation Organoid

Emily’s Entourage has always operated with a sense of urgency and refusal to accept the status quo for Cystic Fibrosis (CF), guided in large part by Emily and her family’s...

20 Jun 2017

Emily Speaks at BIO International Convention

Wondering where in the world is Emily this week? She can be found in sunny San Diego, CA, where she will be participating in two sessions for the 2017 BIO...

16 Jun 2017

EE Provides Seed Funding For CF Gene Therapy Company

We are proud to announce that Emily’s Entourage has provided seed funding to launch Talee Bio, a novel gene therapy company focused on developing revolutionary treatments and a cure for...

01 Jun 2017

Recap: 2017 Exclusive Evening with Emily’s Entourage in NYC (EENY)

“This Entourage. All of you. You are the force that’s fueling the fight of a lifetime. And tonight, we have the chance to obliterate CF.” – Emily’s EENY speech It’s...

15 May 2017

10 Ways You Can Help EE

We often get asked the question from new or long time Entourage members, “how can I help?” With May being CF Awareness Month, we wanted to highlight how you could help...

05 May 2017

Eat A Cookie, Find A Cure

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest blogger is longtime EE treasure Julie...

04 May 2017

Top 5 Reasons Your Support Is Making EE Unstoppable

Emily’s Entourage is the only non-profit organization dedicated to fast-tracking research and drug development for rare, nonsense mutations of Cystic Fibrosis. Here’s why your support is making this Entourage unstoppable:...

02 May 2017

Ready or Not… It’s CF Awareness Month

It’s here, it’s here… our favorite month of the year! May is National Cystic Fibrosis Awareness Month and in true Emily’s Entourage style, we are going BIG to honor the...

14 Apr 2017

A Glimpse Into Life With Chronic Illness

Ever wonder what it actually feels like to have a serious chronic illness like Cystic Fibrosis? Christine Miserandino’s “Spoon Theory” is kind of legendary in the chronic illness world for...

27 Mar 2017

Personalized Medicine Coalition Congressional Briefing & Lobbying

Ms Kramer-Golinkoff goes to Washington! Waving hello to the White House she visited a few times last year, Emily headed to the Hill last week to lobby Senators, their staff...

05 Mar 2017

Meet The 2017 New York Emily’s Entourage Champions

About The Champions Campaign The Emily’s Entourage Champions Campaign recognizes and applauds young professional leaders helping to make a difference in the quest to cure CF. The campaign has run...

24 Feb 2017

Humans of EE: Meet Chloé Plissonneau-Duquene!

Chloé Plissonneau-Duquene, Emily’s biggest fan across the Atlantic Welcome to “Humans of EE”, our riff on the photography project and phenomenon “Humans of New York“. Humans of EE highlights the...

23 Jan 2017

Recap: The 2016 Evening with Emily’s Entourage Gala

Can you hear that? That’s the sound of silos shattering… obstacles crumbling… the limits of what’s possible smashed to pieces — and it’s still reverberating from the evening of December...

22 Sep 2016

Emily Speaks and Is Honored at Global Genes RARE Patient Advocacy Summit

Catch the livestream on Friday, September 23rd at 4pm EST through Rare University’s platform. Today, there is nowhere that Emily would rather be than among other esteemed rare disease stakeholders at...

05 Sep 2016

How EE Helped Land Me a Job

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest blogger is EE superstar Brandon Faske,...