The Delivery of Hope: Reflections from the 2025 EE Scientific Symposium on Gene Delivery
For the final 10% of the cystic fibrosis (CF) community—those who do not benefit from mutation-targeted therapies—the wait for a lifesaving breakthrough... Read More
Introducing #ExtraordinRARE 2025: A Bold New Rare Disease Week Expedition
Every journey begins with a single step. For the rare disease community, that step is often taken against formidable odds—navigating a landscape... Read More
What’s the best that could happen?
By Jessica Rutstein Lazarus, PsyD, Emily’s Entourage board member and Emily’s lifelong best friend Happy 40th Birthday, Em! Happy New Year, everyone!... Read More
Racing Toward a Cure: Team EE Shines in the 2024 Philadelphia Marathon
There’s a certain magic to the weekend of the Philadelphia Marathon that’s hard to put into words—a mix of determination, excitement, and... Read More
Lacing Up for Hope: Meet the Runners of #TeamEE Racing for CF Breakthroughs
In just a few weeks—on November 23 and 24, 2024—our unstoppable #TeamEE runners will lace up their sneakers, hit the pavement, and... Read More
NACFC 2024: Top Boston Breakthroughs for the Final 10%
By Chandra Ghose, PhD, Chief Scientific Officer at Emily’s Entourage Every fall, the North American Cystic Fibrosis Conference (NACFC) brings together our... Read More
Blooming Together: A Night of Hope at the 2024 Emily’s Entourage Gala
On a radiant Saturday evening, October 5, 2024, the Mann Center for Performing Arts in Philadelphia became a beacon of hope and... Read More
Dare to Dream: A Life Filled with Adventure, Purpose, and Impact
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Read More
Rowing to a Future Where Everyone with CF Can “Dare to Dream”
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Read More
Crossing out CF Gave Me Time To Pursue Love, Career, and Community
During CF Awareness Month, Emily’s Entourage invites members of the cystic fibrosis (CF) community to share their stories. Today’s blog post highlights... Read More
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