Racing Toward a Cure: Team EE Shines in the 2024 Philadelphia Marathon
There’s a certain magic to the weekend of the Philadelphia Marathon that’s hard to put into words—a mix of determination, excitement, and... Read More
Lacing Up for Hope: Meet the Runners of #TeamEE Racing for CF Breakthroughs
In just a few weeks—on November 23 and 24, 2024—our unstoppable #TeamEE runners will lace up their sneakers, hit the pavement, and... Read More
Unpacking the Promise of Gene-Based Therapies: Insights from EE’s Gene Therapy Town Hall
On August 22, 2023, Emily’s Entourage (EE) hosted a virtual town hall meeting that delved into the exciting world of gene-based therapies... Read More
A Glimpse Into Life With Chronic Illness
Ever wonder what it actually feels like to have a serious chronic illness like Cystic Fibrosis? Christine Miserandino’s “Spoon Theory” is kind... Read More
Humans of EE: Meet Chloé Plissonneau-Duquene!
Chloé Plissonneau-Duquene, Emily’s biggest fan across the Atlantic Welcome to “Humans of EE”, our riff on the photography project and phenomenon “Humans... Read More
Recap: The 2016 Evening with Emily’s Entourage Gala
Can you hear that? That’s the sound of silos shattering… obstacles crumbling… the limits of what’s possible smashed to pieces — and... Read More
Emily Speaks and Is Honored at Global Genes RARE Patient Advocacy Summit
Catch the livestream on Friday, September 23rd at 4pm EST through Rare University’s platform. Today, there is nowhere that Emily would rather be... Read More
How EE Helped Land Me a Job
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our... Read More
Through the Digital Screen: A Complicated Tale of Friendship in the CF Community
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our... Read More
Jessica Bean’s “CF Superhero” Interview with Emily
We’re so honored that Australian health empowerment coach and blogger Jessica Bean chose to feature Emily on her “CF Superhero” blog series! We are reposting Jessica’s interview with... Read More
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