Ready or Not… It’s CF Awareness Month
It’s here, it’s here… our favorite month of the year! May is National Cystic Fibrosis Awareness Month and in true Emily’s Entourage... Read More
A Glimpse Into Life With Chronic Illness
Ever wonder what it actually feels like to have a serious chronic illness like Cystic Fibrosis? Christine Miserandino’s “Spoon Theory” is kind... Read More
Personalized Medicine Coalition Congressional Briefing & Lobbying
Ms Kramer-Golinkoff goes to Washington! Waving hello to the White House she visited a few times last year, Emily headed to the... Read More
Meet The 2017 New York Emily’s Entourage Champions
About The Champions Campaign The Emily’s Entourage Champions Campaign recognizes and applauds young professional leaders helping to make a difference in the... Read More
Humans of EE: Meet Chloé Plissonneau-Duquene!
Chloé Plissonneau-Duquene, Emily’s biggest fan across the Atlantic Welcome to “Humans of EE”, our riff on the photography project and phenomenon “Humans... Read More
Recap: The 2016 Evening with Emily’s Entourage Gala
Can you hear that? That’s the sound of silos shattering… obstacles crumbling… the limits of what’s possible smashed to pieces — and... Read More
Emily Speaks and Is Honored at Global Genes RARE Patient Advocacy Summit
Catch the livestream on Friday, September 23rd at 4pm EST through Rare University’s platform. Today, there is nowhere that Emily would rather be... Read More
How EE Helped Land Me a Job
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our... Read More
Through the Digital Screen: A Complicated Tale of Friendship in the CF Community
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our... Read More
Jessica Bean’s “CF Superhero” Interview with Emily
We’re so honored that Australian health empowerment coach and blogger Jessica Bean chose to feature Emily on her “CF Superhero” blog series! We are reposting Jessica’s interview with... Read More
English 
Español 
Português 
Português do Brasil 
עִבְרִית 
Français 
Français du Canada 
Italiano 
Türkçe 
Svenska 
Deutsch