Emily's Entourage

GRAB A MARKER AND #CROSSOUTCF: MAY IS CYSTIC FIBROSIS AWARENESS MONTH

27 Apr 2021

During Cystic Fibrosis (CF) Awareness Month, we come together as a community to spread awareness, share personal stories, and unite behind a...

EE Rare Disease Week 2021: “Rare is Everywhere”

22 Feb 2021

Rare Disease Week, which launches on February 22 in celebration of Rare Disease Day on February 28, is an annual celebration to...

“Magic Line” Campaign Exceeds Goals, Takes EE to New Heights

19 Feb 2021

With the Covid pandemic putting a halt to in-person fundraising events in 2020, Emily’s Entourage (EE) sought to reinvent its annual campaign...

Emily’s Entourage Debuts “The Magic Line,” Launches Push to the Final Summit of CF

02 Feb 2021

Emily’s Entourage (EE) has never shied away from a challenge. That is to be expected for an organization that is speeding life-saving...

The Gift of Aging: Happy 36th Birthday, Emily!

06 Jan 2021

Today’s guest blogger is our treasured Emily’s Entourage (EE) Board Member and Emily’s lifelong best friend, Jessica Rutstein Lazarus, whose post officially...

EE Awards $790,000 in Round 5 Funding for Cystic Fibrosis Research

16 Sep 2020

Emily’s Entourage (EE) is thrilled to announce that four new grants have been awarded to advance Cystic Fibrosis (CF) research and drug...

EE Launches Pilot Patient Registry Collaboration with Translate Bio

16 Sep 2020

In September, Emily’s Entourage (EE) launched a first-of-its-kind collaboration with Translate Bio to pilot its Cystic Fibrosis (CF) Nonsense Mutation Patient Registry...