Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
SUBVENCIONES QUE FINANCIAMOS
EE ha concedido millones de dólares a equipos multidisciplinares de todo el mundo para avanzar en la investigación y el desarrollo de fármacos para la 10% final de las personas con FQ.
Nuestro programa de emparejamiento de ensayos clínicos de fibrosis quística es directo al consumidor, lo que hace que el reclutamiento de ensayos sea más rápido, más específico y más eficiente.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
For the final 10% of the cystic fibrosis (CF) community—those who do not benefit from mutation-targeted therapies—the wait for a lifesaving breakthrough has been challenging.... Lee mas
Every journey begins with a single step. For the rare disease community, that step is often taken against formidable odds—navigating a landscape where too many... Lee mas
By Jessica Rutstein Lazarus, PsyD, Emily’s Entourage board member and Emily’s lifelong best friend Happy 40th Birthday, Em! Happy New Year, everyone! And Happy birthday... Lee mas
There’s a certain magic to the weekend of the Philadelphia Marathon that’s hard to put into words—a mix of determination, excitement, and heart that fills... Lee mas