Emily's Entourage

The Delivery of Hope: Reflections from the 2025 EE Scientific Symposium on Gene Delivery

27 Mar 2025

For the final 10% of the cystic fibrosis (CF) community—those who do not benefit from mutation-targeted therapies—the wait for a lifesaving breakthrough...

Introducing #ExtraordinRARE 2025: A Bold New Rare Disease Week Expedition

19 Fév 2025

Every journey begins with a single step. For the rare disease community, that step is often taken against formidable odds—navigating a landscape...

What’s the best that could happen?

07 Jan 2025

By Jessica Rutstein Lazarus, PsyD, Emily’s Entourage board member and Emily’s lifelong best friend Happy 40th Birthday, Em! Happy New Year, everyone!...

Racing Toward a Cure: Team EE Shines in the 2024 Philadelphia Marathon

04 Déc 2024

There’s a certain magic to the weekend of the Philadelphia Marathon that’s hard to put into words—a mix of determination, excitement, and...

Lacing Up for Hope: Meet the Runners of #TeamEE Racing for CF Breakthroughs

12 Nov 2024

In just a few weeks—on November 23 and 24, 2024—our unstoppable #TeamEE runners will lace up their sneakers, hit the pavement, and...

NACFC 2024 : Les principales avancées de Boston pour la 101e édition de la NACFC 2024TP3T

07 Nov 2024

By Chandra Ghose, PhD, Chief Scientific Officer at Emily’s Entourage Every fall, the North American Cystic Fibrosis Conference (NACFC) brings together our...

S'épanouir ensemble : Une nuit d'espoir au gala 2024 Emily's Entourage

23 octobre 2024

Par un samedi soir radieux, le 5 octobre 2024, le Mann Center for Performing Arts de Philadelphie est devenu une lueur d'espoir et...

Osez rêver : Une vie remplie d'aventures, d'objectifs et d'impact

14 mai 2024

Pendant le Mois de la sensibilisation à la fibrose kystique, l'Entourage d'Emily invite les membres de la communauté de la fibrose kystique (FK) à partager leurs histoires. Le billet d'aujourd'hui met en lumière...