Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
LES SUBVENTIONS QUE NOUS FINANÇONS
L'EE a octroyé des millions de dollars à des équipes multidisciplinaires du monde entier afin de faire progresser la recherche et le développement de médicaments pour la 10% finale des personnes atteintes de FK.
Notre programme de mise en relation avec des essais cliniques sur la mucoviscidose s'adresse directement au consommateur, ce qui rend le recrutement des essais plus rapide, plus ciblé et plus efficace.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Catch the livestream on Friday, September 23rd at 4pm EST through Rare University’s platform. Today, there is nowhere that Emily would rather be than among other... Lire la suite
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest... Lire la suite
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest... Lire la suite
We’re so honored that Australian health empowerment coach and blogger Jessica Bean chose to feature Emily on her “CF Superhero” blog series! We are reposting Jessica’s interview with Emily to give... Lire la suite
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