Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
LES SUBVENTIONS QUE NOUS FINANÇONS
L'EE a octroyé des millions de dollars à des équipes multidisciplinaires du monde entier afin de faire progresser la recherche et le développement de médicaments pour la 10% finale des personnes atteintes de FK.
Notre programme de mise en relation avec des essais cliniques sur la mucoviscidose s'adresse directement au consommateur, ce qui rend le recrutement des essais plus rapide, plus ciblé et plus efficace.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
An entourage forms a community of support around a certain person. Our person is Emily, and our entourage is making moves to redefine what it... Lire la suite
Emily’s Entourage has the most generous, thoughtful and dedicated donors! To show our gratitude, we want to shine the spotlight on YOU, the incredible entourage... Lire la suite
Emily of Emily’s Entourage shares interesting tidbits and lesser-known facts about life with Cystic Fibrosis (CF). 1. People with CF can’t be together. The thick,... Lire la suite
Emily of Emily’s Entourage highlights the most impactful parts of her experience as an ePatient at Stanford’s Medicine X Conference. The Stanford Medicine X Conference... Lire la suite
Nous utiliserons ces informations pour vous envoyer des nouvelles et des mises à jour sur l'Entourage d'Emily et pour vous offrir la possibilité de soutenir notre recherche.