Votez Emily pour le héros de la santé de Philadelphie
Our very own Emily has qualified as a semifinalist in the “Health Hero Challenge” by Philadelphia Magazine. And the best news? It’s up to US to win this prestigious honor –... Lire la suite
Blog
Annonce de la campagne des champions de l'Entourage d'Emily !
It’s been an exciting and groundbreaking year for Emily’s Entourage and we could not have done it without all of you! To highlight our amazing supporters, we are launching a... Lire la suite
Emily revient à Stanford Medicine X en tant que conférencière et conseillère
This week, Emily is thrilled to be back as a featured speaker at the annual Stanford Medicine X conference – this time not only as a speaker and panelist, but... Lire la suite
Un poème inspiré
Although we may be biased, we’re pretty sure we have the most incredible Entourage around! Every single day you manage to reach out to us, and touch us in the... Lire la suite
6 conseils pour se relever après avoir été renversé
The other week, I got some disappointing news at the doctor’s. I have to be honest, it caught me off guard and knocked me down. It also got me thinking... Lire la suite
Emily récompensée par la Maison Blanche en tant que "Championne du changement".
Emily spent last Wednesday at the White House as one of nine individuals honored as a Champion of Change for President Obama’s Precision Medicine Initiative. “This recognition from the White... Lire la suite
#FactFriday
After wrapping up another wildly successful CF Awareness month, we wanted to thank YOU for your wonderful engagement and enthusiasm throughout the month of May! Today we want to share... Lire la suite
Just For A Day: An Inside Look At Emily’s Life With CF
Have you ever wondered what it would be like to live with CF—just for one single day? To do hours upon hours of medical treatments and endure disease complications while also... Lire la suite
Le point de vue d'une mère : Célébrer la fête des mères avec la maman d'Emily
Emily’s Entourage would like to wish a very happy Mother’s Day to all the special mothers out there! To celebrate this important day, we asked supermom Liza to answer some... Lire la suite
Membre du conseil d'administration de l'EE : Heather Braver
We are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. What better way to really get to know... Lire la suite
Pleins feux sur les membres du conseil d'administration de l'EE : Rachael Packer
We are very excited to continue “The EE Board Spotlight Series,” which highlights different members of the Emily’s Entourage Board of Directors. What better way to really get to know... Lire la suite
L'entourage d'Emily adopte une nouvelle direction
Emily’s Entourage is pleased to announce a new board/committee structure as we move from a startup nonprofit to a more developed, sustainable organization with real, measurable impact. Emily’s Entourage was... Lire la suite
Faites du bruit : Mai est le mois de la sensibilisation à la mucoviscidose !
Emily’s Entourage has many things planned to help recognize and celebrate the month of May as National Cystic Fibrosis Awareness Month! Whether you’re a loyal EE member or new to... Lire la suite
Le Big Easy Bash de l'EE : Les étudiants de Tulane se battent pour une cure
Two weeks after the biggest Entourage gathering yet and we’re still flying high, just like those little hot air balloons on our EE tees. We’re over the moon and so... Lire la suite
L'Entourage d'Emily lance un nouveau site web
We are thrilled to announce the launch of our new Emily’s Entourage website featuring a brand new “virtual look.” EE is growing up and we are so excited that our website is following suit.... Lire la suite
#TBT : Retour sur notre troisième soirée annuelle avec l'entourage d'Emily !
For our third annual “Evening with Emily’s Entourage”, we headed to the western Philadelphia suburbs and found a wonderful venue at the Baldwin School. We were absolutely overwhelmed by the... Lire la suite
Symposium de l'Entourage d'Emily sur les mutations non sens de la mucoviscidose
On Jan. 21, Emily’s Entourage hosted a scientific symposium to accelerate research for nonsense mutations of Cystic Fibrosis in partnership with Penn Medicine’s Orphan Disease Center. The event kicked off... Lire la suite
Ce que j'ai appris dans la vingtaine
Last week, I turned 30. Nobody’s mind was more blown by this milestone than mine. It’s not that I didn’t plan to get here, but 30 just feels so grown... Lire la suite
Joyeux 30e anniversaire Emily !
Hi everyone, Jess from the Entourage here! Today marks a huge milestone birthday for our namesake and inspiration, Emily Kramer-Golinkoff. To help honor the occasion, I wanted to share a... Lire la suite
Troisième soirée annuelle de vente aux enchères silencieuse avec Emily's Entourage
We are incredibly excited for our gala event THIS SATURDAY and we wanted to give you just a little taste of what our amazing silent auction has to offer! There... Lire la suite
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