Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
LES SUBVENTIONS QUE NOUS FINANÇONS
L'EE a octroyé des millions de dollars à des équipes multidisciplinaires du monde entier afin de faire progresser la recherche et le développement de médicaments pour la 10% finale des personnes atteintes de FK.
Notre programme de mise en relation avec des essais cliniques sur la mucoviscidose s'adresse directement au consommateur, ce qui rend le recrutement des essais plus rapide, plus ciblé et plus efficace.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Today’s guest blogger is our treasured Emily’s Entourage (EE) Board Member and Emily’s lifelong best friend, Jessica Rutstein Lazarus, whose post officially launches our #36for36... Lire la suite
Emily’s Entourage (EE) is thrilled to announce that four new grants have been awarded to advance Cystic Fibrosis (CF) research and drug development, totaling $790,000... Lire la suite
In September, Emily’s Entourage (EE) launched a first-of-its-kind collaboration with Translate Bio to pilot its Cystic Fibrosis (CF) Nonsense Mutation Patient Registry as a tool... Lire la suite
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Lire la suite
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