Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
LES SUBVENTIONS QUE NOUS FINANÇONS
L'EE a octroyé des millions de dollars à des équipes multidisciplinaires du monde entier afin de faire progresser la recherche et le développement de médicaments pour la 10% finale des personnes atteintes de FK.
Notre programme de mise en relation avec des essais cliniques sur la mucoviscidose s'adresse directement au consommateur, ce qui rend le recrutement des essais plus rapide, plus ciblé et plus efficace.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Emily’s Entourage (EE) is humbled to have such a large support system from the surrounding community. Over the years, countless members of the Entourage have... Lire la suite
Emily’s Entourage (EE) is incredibly honored to have a group of scientists dedicated to accelerating research and drug development for nonsense mutations of Cystic Fibrosis... Lire la suite
On May 4, 2019, Emily’s Entourage (EE) stormed Manhattan yet again with the 4th Annual EENY fundraiser. The event was breathtaking (in the best possible... Lire la suite
Emily’s Entourage (EE) is attending the 2019 BIO International Convention at the Pennsylvania Convention Center in Philadelphia, PA. On Day 1, EE co-founder Emily Kramer-Golinkoff... Lire la suite
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