Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
LES SUBVENTIONS QUE NOUS FINANÇONS
L'EE a octroyé des millions de dollars à des équipes multidisciplinaires du monde entier afin de faire progresser la recherche et le développement de médicaments pour la 10% finale des personnes atteintes de FK.
Notre programme de mise en relation avec des essais cliniques sur la mucoviscidose s'adresse directement au consommateur, ce qui rend le recrutement des essais plus rapide, plus ciblé et plus efficace.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
May is National Cystic Fibrosis Awareness Month and at Emily’s Entourage, we never go dark… we’ll be spreading awareness, information and fun like wildfire! If... Lire la suite
Looking for some fresh ways to shine a light on your commitment to Emily’s Entourage this spring? Well you’ve come to the the right place!... Lire la suite
Emily’s Entourage is proud to announce that it has awarded a one-year research grant to Jeffrey Beekman, PhD, at the University Medical Center, Utrecht, Netherlands.... Lire la suite
Last week was Rare Disease Week, a special opportunity to raise critical awareness for rare disease. A disease is considered rare when it affects fewer... Lire la suite
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