Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
LES SUBVENTIONS QUE NOUS FINANÇONS
L'EE a octroyé des millions de dollars à des équipes multidisciplinaires du monde entier afin de faire progresser la recherche et le développement de médicaments pour la 10% finale des personnes atteintes de FK.
Notre programme de mise en relation avec des essais cliniques sur la mucoviscidose s'adresse directement au consommateur, ce qui rend le recrutement des essais plus rapide, plus ciblé et plus efficace.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
For Rare Disease Week, Emily will be taking the message of Emily’s Entourage to Vertex Pharmaceuticals in Boston, Massachusetts. She will use her story as... Lire la suite
We’re up in the sky. We’re on cloud nine. We’re over the moon, and it’s all because of that incredible, unforgettable evening on December 5,... Lire la suite
It all started with a small idea to expand our reach and help raise more funds… Emily’s Entourage has so many ambassadors around the country... Lire la suite
Birthdays can be bittersweet around here as we love the chance to celebrate Emily and surround her with love and laughter, but we also simultaneously... Lire la suite
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