Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
LES SUBVENTIONS QUE NOUS FINANÇONS
L'EE a octroyé des millions de dollars à des équipes multidisciplinaires du monde entier afin de faire progresser la recherche et le développement de médicaments pour la 10% finale des personnes atteintes de FK.
Notre programme de mise en relation avec des essais cliniques sur la mucoviscidose s'adresse directement au consommateur, ce qui rend le recrutement des essais plus rapide, plus ciblé et plus efficace.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
On April 10, Emily’s brother Coby and the incredibly dedicated EE team at Tulane organized a major fundraiser called “Throw Down at Uptown for Emily’s... Lire la suite
Hi all, Happy May! This is an especially important month because May is National Cystic Fibrosis Awareness Month. CF only affects 30,000 people in... Lire la suite
Hi all! This past Saturday (4/21), EE members participated in the Annual Narberth Cystic Fibrosis Run. It is a 5-mile hilly course that winds through... Lire la suite
Earlier this year, Abbott awarded Emily the “Thriving Graduate Student” scholarship through the CFCareForward Program! The $19,000 scholarship is given to a graduate student with... Lire la suite
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