9 דרכים טריות לעזור ל-EE באביב הקרוב

Looking for some fresh ways to shine a light on your commitment to Emily’s Entourage this spring? Well you’ve come to the the right place! Whether you donate in time or in dollars, life-changing breakthroughs for those with nonsense mutations of Cystic Fibrosis will not be possible without you! So let’s shake off those winter blues by painting the world PURPLE this spring!

1.Celebrate CF Awareness Month

May is National Cystic Fibrosis Awareness Month, and in true EE style, we are pulling out all the stops to honor the CF community and spread awareness. After all, more awareness = more support = more research = more life-saving breakthroughs, and THAT is something worth celebrating! To make sure you don’t miss a thing––follow us on פייסבוק, אינסטגרם, טוויטר ו our blog.

2. Attend The New York Gala

Ditch the black tie, cufflinks and ball gowns, because Emily’s Entourage is planning another big event in New York this spring — and this time in partnership with the Generation Nxt! Held in the heart of Manhattan, this unforgettable evening includes a dinner reception, dancing, live entertainment, a moving program, and sEEcret surprises! This year’s event will be held on June 13 at Marquee in Chelsea, New York and is sure to wow. Interested in attending? Get your tickets ו individual sponsorships now!!! 

3. Donate Your Birthday 

Do you have a birthday coming up? Celebrating a special milestone or event? Want to pay it forward during the holidays? Whatever the occasion, donating your birthday and other life events is a fun, easy way to raise critical funds for EE. Besides helping to fund more research (the average fundraiser brings in $538!), hosting an online fundraiser gives you the opportunity to become an ambassador for EE’s mission. Facebook fundraisers are easy to set up on your own, or you can contact us and we are happy to help. Get in touch with us כאן. 

4. Host A Parlor Meeting

Are you interested in helping EE achieve its goals? Think your friends, family and coworkers would be interested in learning more about our mission to cure CF? Consider hosting a parlor meeting in your home. These events are intimate gatherings featuring remarks by Emily and a member of our Scientific Advisory Board on the latest research updates and EE’s strategic approach to accelerating the development of breakthrough therapies. To get started planning your parlor meeting, contact us כאן. 

5. Secure an Awesome Auction Item

Do you know someone famous or a local business owner? Consider securing a valuable gift such as artwork, concert tickets, signed memorabilia and one-of-a-kind experiences to auction off for our annual Gala or through Charitybuzz. You would be shocked by the major funds and excitement that unique auction items and experiences can raise. All it takes is a little time, effort, and the right connections! Please פנה אלינו כאן and an EE​ representative will help schedule a pick-up and ​provide you a tax-deductible receipt.

6. Tribute Donation

Make a life-changing gift in honor or memory of a loved one. Every donation, large and small, propels our researchers closer to a breakthrough. Since 2011, EE has been dedicated to driving innovative, cutting-edge research and drug development for nonsense mutations of Cystic Fibrosis. With your support, we have funded over $2.7 million in research grants! Click here to make a donation.

7. Sign Up On The Patient Registry

Do you have a nonsense mutation of Cystic Fibrosis? Participating in a clinical trial is an invaluable way to get involved in the pursuit of fast breakthroughs––and a cure!  To stay informed about relevant clinical advances and trials, enroll in our Patient Registry כאן. 

8. Grab Your Tribe

Looking for a way to engage a new group of EE supporters? We love hearing of the creative ideas our supporters come up with to raise additional funds for EE. Reverse raffles, yoga classes, Zumba dance-a-thons, fitness classes and Mitzvah projects are just a few of the ways EE supporters can help raise money in the fight against CF.  If you’re looking to get more involved in Emily’s Entourage through the activities listed above or have a brand new idea of your own let us know כאן. 

9. Join #TeamEE

Take advantage of the beautiful spring weather and start training to race with #TeamEE in the Philadelphia Half and Full Marathon this upcoming November or in a race or fitness event in your neck of the woods. Make the most of your miles in the race to fund fast breakthroughs for nonsense mutations of CF by becoming part of #TeamEE. Whether you’re a seasoned or rookie runner, we want you on our team and we need your help to cross the finish line!!! To get started, contact us כאן.