עשר השאלות המובילות (והתשובות!) על ערב השנה עם חגיגת הפמליה של אמילי
In case you haven’t noticed, we’re pretty excited that there are only 5 days separating us from our annual Evening with Emily’s Entourage Gala! We know that many of you... קרא עוד
בלוג
הכירו את אלופי הפמליה של אמילי לשנת 2017
Cue the Rocky Theme song— because Philadelphia’s finest champions are only weeks away from hitting the ring. The Emily’s Entourage 2017 Champions Campaign has made it’s way back to Philadelphia... קרא עוד
להתאהבEE עם הפמליה של אמילי: הכירו את פאם
As sweatshirts and boots make their way out of the backs of our closets, and the leaves begin to change color, we are reminded it’s officially fall in Philadelphia,... קרא עוד
כלי חדש בארגז הכלים: הפמליה של אמילי יוצרת מוטציה אורגנית של שטות
Emily’s Entourage has always operated with a sense of urgency and refusal to accept the status quo for Cystic Fibrosis (CF), guided in large part by Emily and her family’s... קרא עוד
אמילי נואם בכנס הבינלאומי של BIO
Wondering where in the world is Emily this week? She can be found in sunny San Diego, CA, where she will be participating in two sessions for the 2017 BIO... קרא עוד
EE מספקת מימון ראשוני לחברת CF Gene Therapy
We are proud to announce that Emily’s Entourage has provided seed funding to launch Talee Bio, a novel gene therapy company focused on developing revolutionary treatments and a cure for... קרא עוד
סיכום: ערב בלעדי 2017 עם הפמליה של אמילי בניו יורק (EENY)
“This Entourage. All of you. You are the force that’s fueling the fight of a lifetime. And tonight, we have the chance to obliterate CF.” – Emily’s EENY speech It’s... קרא עוד
10 דרכים בהן תוכל לעזור ל-EE
We often get asked the question from new or long time Entourage members, “how can I help?” With May being CF Awareness Month, we wanted to highlight how you could help... קרא עוד
תאכל עוגיה, מצא תרופה
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest blogger is longtime EE treasure Julie... קרא עוד
5 הסיבות המובילות שהתמיכה שלך הופכת את EE לבלתי ניתן לעצירה
Emily’s Entourage is the only non-profit organization dedicated to fast-tracking research and drug development for rare, nonsense mutations of Cystic Fibrosis. Here’s why your support is making this Entourage unstoppable:... קרא עוד
מוכן או לא... זה חודש המודעות ל-CF
It’s here, it’s here… our favorite month of the year! May is National Cystic Fibrosis Awareness Month and in true Emily’s Entourage style, we are going BIG to honor the... קרא עוד
הצצה לחיים עם מחלה כרונית
Ever wonder what it actually feels like to have a serious chronic illness like Cystic Fibrosis? Christine Miserandino’s “Spoon Theory” is kind of legendary in the chronic illness world for... קרא עוד
תדרוך וקונגרס של קואליציית הרפואה האישית
Ms Kramer-Golinkoff goes to Washington! Waving hello to the White House she visited a few times last year, Emily headed to the Hill last week to lobby Senators, their staff... קרא עוד
הכירו את אלופי הפמליה של ניו יורק אמילי לשנת 2017
About The Champions Campaign The Emily’s Entourage Champions Campaign recognizes and applauds young professional leaders helping to make a difference in the quest to cure CF. The campaign has run... קרא עוד
בני האדם של EE: הכירו את קלואה פליסון-דוקן!
Chloé Plissonneau-Duquene, Emily’s biggest fan across the Atlantic Welcome to “Humans of EE”, our riff on the photography project and phenomenon “Humans of New York“. Humans of EE highlights the... קרא עוד
סיכום: ערב 2016 עם הפמליה של אמילי
Can you hear that? That’s the sound of silos shattering… obstacles crumbling… the limits of what’s possible smashed to pieces — and it’s still reverberating from the evening of December... קרא עוד
אמילי מדברת ומתכבדת ב-Global Genes RARE Advocacy Summit
Catch the livestream on Friday, September 23rd at 4pm EST through Rare University’s platform. Today, there is nowhere that Emily would rather be than among other esteemed rare disease stakeholders at... קרא עוד
איך EE עזר להשיג לי עבודה
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest blogger is EE superstar Brandon Faske,... קרא עוד
דרך המסך הדיגיטלי: סיפור מסובך על ידידות בקהילת CF
From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest is Mallory Smith, a 23-year-old writer living... קרא עוד
ראיון "גיבור העל" של ג'סיקה בין עם אמילי
We’re so honored that Australian health empowerment coach and blogger Jessica Bean chose to feature Emily on her “CF Superhero” blog series! We are reposting Jessica’s interview with Emily to give our Entourage a window into... קרא עוד
עִבְרִית 
English 
Español 
Português 
Português do Brasil 
Français 
Français du Canada 
Italiano 
Türkçe 
Svenska 
Deutsch