Emily's Entourage

The Delivery of Hope: Reflections from the 2025 EE Scientific Symposium on Gene Delivery

27 מרץ 2025

For the final 10% of the cystic fibrosis (CF) community—those who do not benefit from mutation-targeted therapies—the wait for a lifesaving breakthrough...

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Introducing #ExtraordinRARE 2025: A Bold New Rare Disease Week Expedition

19 פבר 2025

Every journey begins with a single step. For the rare disease community, that step is often taken against formidable odds—navigating a landscape...

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What’s the best that could happen?

07 ינו 2025

By Jessica Rutstein Lazarus, PsyD, Emily’s Entourage board member and Emily’s lifelong best friend Happy 40th Birthday, Em! Happy New Year, everyone!...

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Racing Toward a Cure: Team EE Shines in the 2024 Philadelphia Marathon

04 דצמ 2024

There’s a certain magic to the weekend of the Philadelphia Marathon that’s hard to put into words—a mix of determination, excitement, and...

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Lacing Up for Hope: Meet the Runners of #TeamEE Racing for CF Breakthroughs

12 נוב 2024

In just a few weeks—on November 23 and 24, 2024—our unstoppable #TeamEE runners will lace up their sneakers, hit the pavement, and...

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NACFC 2024: Top Boston Breakthroughs for the Final 10%

07 נוב 2024

By Chandra Ghose, PhD, Chief Scientific Officer at Emily’s Entourage Every fall, the North American Cystic Fibrosis Conference (NACFC) brings together our...

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