Listening Isn’t Nonsense: Becoming Your Own Patient Advocate
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Read More
GRANTS WE FUND
EE has awarded millions of dollars to multi-disciplinary teams around the world to advance research and drug development for the final 10% of people with CF.
CLINICAL TRIALS
Our cystic fibrosis clinical trial matchmaking program is direct-to-consumer, making trial recruitment faster, more targeted, and more efficient.
PATIENT DATABASE
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Desperation Can Spur Innovation: Recap of EE’s First Virtual Event
As planning began for the 5th annual EENY spring event, the world was coming to terms with some stark new realities. The Emily’s Entourage (EE)... Read More
High Risk During a Pandemic: The CF Community’s Superpower
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Read More
Mixed Feelings: Living with Rare CF Mutations
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Read More
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