Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
GRANTS WE FUND
EE has awarded millions of dollars to multi-disciplinary teams around the world to advance research and drug development for the final 10% of people with CF.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
This February 28 marks the 12th Annual Rare Disease Day, a worldwide campaign to bring about critical awareness for rare diseases. This campaign, while primarily... Read More
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From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Read More