Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
GRANTS WE FUND
EE has awarded millions of dollars to multi-disciplinary teams around the world to advance research and drug development for the final 10% of people with CF.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
May is National Cystic Fibrosis Awareness Month and at Emily’s Entourage, we never go dark… we’ll be spreading awareness, information and fun like wildfire! If... Read More
Looking for some fresh ways to shine a light on your commitment to Emily’s Entourage this spring? Well you’ve come to the the right place!... Read More
Emily’s Entourage is proud to announce that it has awarded a one-year research grant to Jeffrey Beekman, PhD, at the University Medical Center, Utrecht, Netherlands.... Read More
Last week was Rare Disease Week, a special opportunity to raise critical awareness for rare disease. A disease is considered rare when it affects fewer... Read More