EE Launches “ExtraordinRARE” Campaign for Rare Disease Week
Rare Disease Week, an annual, worldwide campaign to raise critical awareness for rare diseases, launches today in celebration of Rare Disease Day on February 28.... Read More
GRANTS WE FUND
EE has awarded millions of dollars to multi-disciplinary teams around the world to advance research and drug development for the final 10% of people with CF.
CLINICAL TRIALS
Our cystic fibrosis clinical trial matchmaking program is direct-to-consumer, making trial recruitment faster, more targeted, and more efficient.
PATIENT DATABASE
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
Emily’s Entourage (EE) Hosted 5th Annual Cocktail Reception at NACFC 2022
Back in-person for the first time since 2019, the invite-only reception brought together members of the cystic fibrosis (CF) community to celebrate EE’s achievements to... Read More
Small Steps: Keep Birthdays Coming for Everyone With CF
By Jessica Rutstein Lazarus, Emily’s Entourage board member and Emily’s lifelong best friend Being a parent to two young children means that each day I... Read More
Laces Up, Team EE! 22 Runners Raced Towards CF Cures in the Philadelphia Marathon
We learned a long time ago that the people who power Emily’s Entourage (EE) are the strongest and most tenacious group of humans in the... Read More
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