Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
SUBVENÇÕES QUE FINANCIAMOS
A EE atribuiu milhões de dólares a equipas multidisciplinares de todo o mundo para fazer avançar a investigação e o desenvolvimento de medicamentos para o último 10% das pessoas com FC.
O nosso programa de matchmaking de ensaios clínicos de fibrose cística é direto ao consumidor, tornando o recrutamento de ensaios mais rápido, mais direcionado e mais eficiente.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
For the final 10% of the cystic fibrosis (CF) community—those who do not benefit from mutation-targeted therapies—the wait for a lifesaving breakthrough has been challenging.... Ler mais
Every journey begins with a single step. For the rare disease community, that step is often taken against formidable odds—navigating a landscape where too many... Ler mais
By Jessica Rutstein Lazarus, PsyD, Emily’s Entourage board member and Emily’s lifelong best friend Happy 40th Birthday, Em! Happy New Year, everyone! And Happy birthday... Ler mais
There’s a certain magic to the weekend of the Philadelphia Marathon that’s hard to put into words—a mix of determination, excitement, and heart that fills... Ler mais
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