Emily's Entourage

28 de novembro de 2017

As dez principais perguntas (e respostas!) sobre a Gala Evening with Emily's Entourage deste ano

In case you haven’t noticed, we’re pretty excited that there are only 5 days separating us from our annual Evening with Emily’s Entourage Gala! We know that many of you...

Ler mais

16 de novembro de 2017

Conheça os campeões da Emily's Entourage de 2017

Cue the Rocky Theme song— because Philadelphia’s finest champions are only weeks away from hitting the ring. The Emily’s Entourage 2017 Champions Campaign has made it’s way back to Philadelphia...

Ler mais

10 Out 2017

Apaixonar-se pela Emily's Entourage: Conheça a Pam

As sweatshirts and boots make their way out of the backs of our closets, and the leaves begin to change color, we are reminded it’s officially fall in Philadelphia,...

Ler mais

20 Set 2017

Nova ferramenta na caixa de ferramentas: Emily's Entourage cria um Organoide de Mutação Nonsense

Emily’s Entourage has always operated with a sense of urgency and refusal to accept the status quo for Cystic Fibrosis (CF), guided in large part by Emily and her family’s...

Ler mais

20 de junho de 2017

Emily discursa na Convenção Internacional BIO

Wondering where in the world is Emily this week? She can be found in sunny San Diego, CA, where she will be participating in two sessions for the 2017 BIO...

Ler mais

16 de junho de 2017

EE fornece financiamento inicial para empresa de terapia genética da FC

We are proud to announce that Emily’s Entourage has provided seed funding to launch Talee Bio, a novel gene therapy company focused on developing revolutionary treatments and a cure for...

Ler mais

01 Jun 2017

Recapitulação: Noite exclusiva de 2017 com a comitiva de Emily em Nova Iorque (EENY)

“This Entourage. All of you. You are the force that’s fueling the fight of a lifetime. And tonight, we have the chance to obliterate CF.” – Emily’s EENY speech It’s...

Ler mais

15 de maio de 2017

10 formas de ajudar a EE

We often get asked the question from new or long time Entourage members, “how can I help?” With May being CF Awareness Month, we wanted to highlight how you could help...

Ler mais

05 de maio de 2017

Coma um biscoito, encontre uma cura

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest blogger is longtime EE treasure Julie...

Ler mais

04 de maio de 2017

As 5 principais razões pelas quais o seu apoio está a tornar a EE imparável

Emily’s Entourage is the only non-profit organization dedicated to fast-tracking research and drug development for rare, nonsense mutations of Cystic Fibrosis. Here’s why your support is making this Entourage unstoppable:...

Ler mais

02 de maio de 2017

Pronto ou não... É o mês da sensibilização para a FC

It’s here, it’s here… our favorite month of the year! May is National Cystic Fibrosis Awareness Month and in true Emily’s Entourage style, we are going BIG to honor the...

Ler mais

14 Abr 2017

Um olhar sobre a vida com uma doença crónica

Ever wonder what it actually feels like to have a serious chronic illness like Cystic Fibrosis? Christine Miserandino’s “Spoon Theory” is kind of legendary in the chronic illness world for...

Ler mais

27 de março de 2017

Coalizão de Medicina Personalizada - Briefing e Lobby no Congresso

Ms Kramer-Golinkoff goes to Washington! Waving hello to the White House she visited a few times last year, Emily headed to the Hill last week to lobby Senators, their staff...

Ler mais

05 Mar 2017

Conheça os campeões de 2017 da Emily's Entourage de Nova Iorque

About The Champions Campaign The Emily’s Entourage Champions Campaign recognizes and applauds young professional leaders helping to make a difference in the quest to cure CF. The campaign has run...

Ler mais

24 Fev 2017

Humans of EE: Conheça Chloé Plissonneau-Duquene!

Chloé Plissonneau-Duquene, Emily’s biggest fan across the Atlantic Welcome to “Humans of EE”, our riff on the photography project and phenomenon “Humans of New York“. Humans of EE highlights the...

Ler mais

23 de janeiro de 2017

Recapitulação: Gala "Evening with Emily's Entourage" de 2016

Can you hear that? That’s the sound of silos shattering… obstacles crumbling… the limits of what’s possible smashed to pieces — and it’s still reverberating from the evening of December...

Ler mais

22 Set 2016

Emily fala e é homenageada na Cimeira de Defesa dos Doentes da Global Genes RARE

Catch the livestream on Friday, September 23rd at 4pm EST through Rare University’s platform. Today, there is nowhere that Emily would rather be than among other esteemed rare disease stakeholders at...

Ler mais

05 Set 2016

Como a EE me ajudou a conseguir um emprego

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest blogger is EE superstar Brandon Faske,...

Ler mais

05 Set 2016

Através do ecrã digital: Uma história complicada de amizade na comunidade de FC

From time to time we invite guest bloggers who are part of the EE community to contribute their unique voices to our blog. Today’s guest is Mallory Smith, a 23-year-old writer living...

Ler mais

08 Ago 2016

Entrevista de Jessica Bean "CF Superhero" com Emily

We’re so honored that Australian health empowerment coach and blogger Jessica Bean chose to feature Emily on her “CF Superhero” blog series! We are reposting Jessica’s interview with Emily to give our Entourage a window into...

Ler mais

Blogue

As dez principais perguntas (e respostas!) sobre a Gala Evening with Emily's Entourage deste ano

Conheça os campeões da Emily's Entourage de 2017

Apaixonar-se pela Emily's Entourage: Conheça a Pam

Nova ferramenta na caixa de ferramentas: Emily's Entourage cria um Organoide de Mutação Nonsense

Emily discursa na Convenção Internacional BIO

EE fornece financiamento inicial para empresa de terapia genética da FC

Recapitulação: Noite exclusiva de 2017 com a comitiva de Emily em Nova Iorque (EENY)

10 formas de ajudar a EE

Coma um biscoito, encontre uma cura

As 5 principais razões pelas quais o seu apoio está a tornar a EE imparável

Pronto ou não... É o mês da sensibilização para a FC

Um olhar sobre a vida com uma doença crónica

Coalizão de Medicina Personalizada - Briefing e Lobby no Congresso

Conheça os campeões de 2017 da Emily's Entourage de Nova Iorque

Humans of EE: Conheça Chloé Plissonneau-Duquene!

Recapitulação: Gala "Evening with Emily's Entourage" de 2016

Emily fala e é homenageada na Cimeira de Defesa dos Doentes da Global Genes RARE

Como a EE me ajudou a conseguir um emprego

Através do ecrã digital: Uma história complicada de amizade na comunidade de FC

Entrevista de Jessica Bean "CF Superhero" com Emily

Subscrever o nosso blogue