Emily's Entourage

The Delivery of Hope: Reflections from the 2025 EE Scientific Symposium on Gene Delivery

27 Mar 2025

For the final 10% of the cystic fibrosis (CF) community—those who do not benefit from mutation-targeted therapies—the wait for a lifesaving breakthrough...

Ler mais

Introducing #ExtraordinRARE 2025: A Bold New Rare Disease Week Expedition

19 Fev 2025

Every journey begins with a single step. For the rare disease community, that step is often taken against formidable odds—navigating a landscape...

Ler mais

What’s the best that could happen?

07 Jan 2025

By Jessica Rutstein Lazarus, PsyD, Emily’s Entourage board member and Emily’s lifelong best friend Happy 40th Birthday, Em! Happy New Year, everyone!...

Ler mais

Racing Toward a Cure: Team EE Shines in the 2024 Philadelphia Marathon

04 Dez 2024

There’s a certain magic to the weekend of the Philadelphia Marathon that’s hard to put into words—a mix of determination, excitement, and...

Ler mais

Lacing Up for Hope: Meet the Runners of #TeamEE Racing for CF Breakthroughs

12 Nov 2024

In just a few weeks—on November 23 and 24, 2024—our unstoppable #TeamEE runners will lace up their sneakers, hit the pavement, and...

Ler mais

NACFC 2024: Top Boston Breakthroughs for the Final 10%

07 Nov 2024

By Chandra Ghose, PhD, Chief Scientific Officer at Emily’s Entourage Every fall, the North American Cystic Fibrosis Conference (NACFC) brings together our...

Ler mais

Florescendo juntos: Uma noite de esperança na Gala Emily's Entourage 2024

23 Out 2024

Numa radiante noite de sábado, 5 de outubro de 2024, o Mann Center for Performing Arts, em Filadélfia, tornou-se um farol de esperança e...

Ler mais

Atreva-se a sonhar: Uma vida cheia de aventura, objetivo e impacto

14 de maio de 2024

Durante o Mês da Sensibilização para a FC, a Emily's Entourage convida os membros da comunidade da fibrose quística (FC) a partilharem as suas histórias. A publicação de hoje no blogue destaca...

Ler mais