Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
SUBSÍDIOS QUE FINANCIAMOS
A EE concedeu milhões de dólares a equipes multidisciplinares em todo o mundo para avançar na pesquisa e no desenvolvimento de medicamentos para o 10% final de pessoas com FC.
Nosso programa de combinação de estudos clínicos sobre fibrose cística é direto ao consumidor, tornando o recrutamento de estudos mais rápido, mais direcionado e mais eficiente.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
May is National Cystic Fibrosis Awareness Month and at Emily’s Entourage, we never go dark… we’ll be spreading awareness, information and fun like wildfire! If... Leia mais
Looking for some fresh ways to shine a light on your commitment to Emily’s Entourage this spring? Well you’ve come to the the right place!... Leia mais
Emily’s Entourage is proud to announce that it has awarded a one-year research grant to Jeffrey Beekman, PhD, at the University Medical Center, Utrecht, Netherlands.... Leia mais
Last week was Rare Disease Week, a special opportunity to raise critical awareness for rare disease. A disease is considered rare when it affects fewer... Leia mais