Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
SUBSÍDIOS QUE FINANCIAMOS
A EE concedeu milhões de dólares a equipes multidisciplinares em todo o mundo para avançar na pesquisa e no desenvolvimento de medicamentos para o 10% final de pessoas com FC.
Nosso programa de combinação de estudos clínicos sobre fibrose cística é direto ao consumidor, tornando o recrutamento de estudos mais rápido, mais direcionado e mais eficiente.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
For Rare Disease Week, Emily will be taking the message of Emily’s Entourage to Vertex Pharmaceuticals in Boston, Massachusetts. She will use her story as... Leia mais
We’re up in the sky. We’re on cloud nine. We’re over the moon, and it’s all because of that incredible, unforgettable evening on December 5,... Leia mais
It all started with a small idea to expand our reach and help raise more funds… Emily’s Entourage has so many ambassadors around the country... Leia mais
Birthdays can be bittersweet around here as we love the chance to celebrate Emily and surround her with love and laughter, but we also simultaneously... Leia mais