Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
BIDRAG VI FINANSIERAR
EE har delat ut miljontals dollar till tvärvetenskapliga team runt om i världen för att främja forskning och läkemedelsutveckling för de sista 10% hos personer med CF.
Vårt program för att matcha kliniska prövningar för cystisk fibros är direkt till konsument, vilket gör rekryteringen av prövningar snabbare, mer målinriktad och effektivare.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
During Cystic Fibrosis (CF) Awareness Month, we come together as a community to spread awareness, share personal stories, and unite behind a common mission to... Läs mer om
Rare Disease Week, which launches on February 22 in celebration of Rare Disease Day on February 28, is an annual celebration to raise awareness for... Läs mer om
With the Covid pandemic putting a halt to in-person fundraising events in 2020, Emily’s Entourage (EE) sought to reinvent its annual campaign in true EE... Läs mer om
Emily’s Entourage (EE) has never shied away from a challenge. That is to be expected for an organization that is speeding life-saving research and drug... Läs mer om
Vi kommer att använda denna information för att skicka dig nyheter och uppdateringar om Emily's Entourage och erbjuda möjligheter att stödja vår forskning.