Emily's Entourage » cf awareness

Emily’s Entourage Co-founder Awarded 2024 Leadership in Personalized Medicine Award by the Personalized Medicine Coalition

12 Jun 2024

Emily Kramer-Golinkoff, an individual with cystic fibrosis and co-founder of Emily’s Entourage, is the winner of this year’s Award for Leadership in...

GRAB A MARKER AND #CROSSOUTCF: MAY IS CYSTIC FIBROSIS AWARENESS MONTH

27 Apr 2021

During Cystic Fibrosis (CF) Awareness Month, we come together as a community to spread awareness, share personal stories, and unite behind a...

EE Rare Disease Week 2021: “Rare is Everywhere”

22 Feb 2021

Rare Disease Week, which launches on February 22 in celebration of Rare Disease Day on February 28, is an annual celebration to...

All Hands On Deck: It is Cystic Fibrosis Awareness Month

01 May 2020

While days seem to blend together lately and time somehow feels both infinitely short and long, there is one thing we know...

Happy 35th Birthday, Emily!

07 Jan 2020

Today’s guest blogger is our treasured EE Board Member and Emily’s lifelong best friend, Jessica Rutstein Lazarus, whose post officially launches our...

Emily’s Thoughts on “Five Feet Apart”

18 Mar 2019

“Have you seen the film? What do you think?” I’ve been encountering these questions everywhere I turn, in real life and on...