Emily’s Entourage Officially Launches Global ‘CF Clinical Trial Connect’ to Drive Breakthrough Therapies for the Underserved CF Community
New, upgraded platform connects people with cystic fibrosis worldwide with new clinical trial opportunities, accelerating development of therapies for those who remain... Read More
Emily’s Entourage Awards $1,487,500 Research Grant to Launch Pioneering Phage Clinical Trial for Combatting CF Infections
The funded project, led by research teams at the University of California, San Diego and the University of Pittsburgh, aims to advance... Read More
Emily’s Entourage Co-founder Awarded 2024 Leadership in Personalized Medicine Award by the Personalized Medicine Coalition
Emily Kramer-Golinkoff, an individual with cystic fibrosis and co-founder of Emily’s Entourage, is the winner of this year’s Award for Leadership in... Read More
Emily’s Entourage Awards $858,932 in Inaugural Collaborative Research Grant for Novel Approach to Targeted Airway Delivery in Cystic Fibrosis Treatments
Through the newly-awarded funding from EE, research teams from the University of Iowa, CHOP, and the University of Rochester seek to overcome... Read More
Stolen Dreams and Freedom: An Adult With CF’s Journey to a Double-Lung Transplant
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to... Read More
Straddling the Line Between the Sick and Well Worlds: A Mother Shares Her Late Daughter’s 25-Year-Long Battle With Cystic Fibrosis
On Thursday, July 15, 2021, Emily’s Entourage (EE) held a “Patient Listening Session” with the U.S. Food and Drug Administration (FDA) to... Read More
Drawing a Future Without CF: Recap of EENY’s 2021 Virtual Event
With the world is still in the throes of a global pandemic and in-person gatherings, while starting to take hold, still not... Read More
GRAB A MARKER AND #CROSSOUTCF: MAY IS CYSTIC FIBROSIS AWARENESS MONTH
During Cystic Fibrosis (CF) Awareness Month, we come together as a community to spread awareness, share personal stories, and unite behind a... Read More
EE Rare Disease Week 2021: “Rare is Everywhere”
Rare Disease Week, which launches on February 22 in celebration of Rare Disease Day on February 28, is an annual celebration to... Read More
Desperation Can Spur Innovation: Recap of EE’s First Virtual Event
As planning began for the 5th annual EENY spring event, the world was coming to terms with some stark new realities. The... Read More
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