Emily's Entourage

The Delivery of Hope: Reflections from the 2025 EE Scientific Symposium on Gene Delivery

27 Mar 2025

For the final 10% of the cystic fibrosis (CF) community—those who do not benefit from mutation-targeted therapies—the wait for a lifesaving breakthrough has been challenging....

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Introducing #ExtraordinRARE 2025: A Bold New Rare Disease Week Expedition

19 Şub 2025

Every journey begins with a single step. For the rare disease community, that step is often taken against formidable odds—navigating a landscape where too many...

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What’s the best that could happen?

07 Oca 2025

By Jessica Rutstein Lazarus, PsyD, Emily’s Entourage board member and Emily’s lifelong best friend Happy 40th Birthday, Em! Happy New Year, everyone! And Happy birthday...

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Racing Toward a Cure: Team EE Shines in the 2024 Philadelphia Marathon

04 Ara 2024

There’s a certain magic to the weekend of the Philadelphia Marathon that’s hard to put into words—a mix of determination, excitement, and heart that fills...

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Son Blog Yazıları

The Delivery of Hope: Reflections from the 2025 EE Scientific Symposium on Gene Delivery

Introducing #ExtraordinRARE 2025: A Bold New Rare Disease Week Expedition

What’s the best that could happen?

Racing Toward a Cure: Team EE Shines in the 2024 Philadelphia Marathon

Kistik Fibrozis için Hızlı Atılımlar

FONLADIĞIMIZ HİBELER

KLINIK DENEYLER

HASTA VERİ TABANI

Son Blog Yazıları

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