Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
FONLADIĞIMIZ HİBELER
EE, KF'li kişilerin son 10%'si için araştırma ve ilaç geliştirmeyi ilerletmek amacıyla dünyanın dört bir yanındaki çok disiplinli ekiplere milyonlarca dolar ödül vermiştir.
Kistik fibroz klinik deneme eşleştirme programımız doğrudan tüketiciye yöneliktir ve deneme alımını daha hızlı, daha hedefli ve daha verimli hale getirir.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
By Jennie, mother of a child with cystic fibrosis As we head into Thanksgiving, I’m looking forward to some much-needed decompression and quality time with... Daha fazla bilgi edinin
By Nicholas Dinges, board member, Emily’s Entourage I’ve known Emily for 25 years now (we went to middle school, high school, and even college together!).... Daha fazla bilgi edinin
By Erin Moore, mother of a child with cystic fibrosis “They told you he has CF, right?,” the doctor said while he finished dressing in... Daha fazla bilgi edinin