Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
FONLADIĞIMIZ HİBELER
EE, KF'li kişilerin son 10%'si için araştırma ve ilaç geliştirmeyi ilerletmek amacıyla dünyanın dört bir yanındaki çok disiplinli ekiplere milyonlarca dolar ödül vermiştir.
Kistik fibroz klinik deneme eşleştirme programımız doğrudan tüketiciye yöneliktir ve deneme alımını daha hızlı, daha hedefli ve daha verimli hale getirir.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
This February 28 marks the 12th Annual Rare Disease Day, a worldwide campaign to bring about critical awareness for rare diseases. This campaign, while primarily... Daha fazla bilgi edinin
Our next installment of #FallinLovEE with EE includes a very special announcement: Emily Priebe and Judah Levine, co-founders of the community events company Eesho, will... Daha fazla bilgi edinin
From time to time we invite guest bloggers who are part of the Emily’s Entourage (EE) community to contribute their unique voices to our blog.... Daha fazla bilgi edinin
On December 1, 2018 we held our 7th Annual Evening with Emily’s Entourage in East Falls and words cannot express the joy brought on by... Daha fazla bilgi edinin