Emily’s Entourage speeds lifesaving research and drug development for individuals in the final 10% of the cystic fibrosis (CF) community that do not benefit from currently available mutation-targeted therapies.
FONLADIĞIMIZ HİBELER
EE, KF'li kişilerin son 10%'si için araştırma ve ilaç geliştirmeyi ilerletmek amacıyla dünyanın dört bir yanındaki çok disiplinli ekiplere milyonlarca dolar ödül vermiştir.
Kistik fibroz klinik deneme eşleştirme programımız doğrudan tüketiciye yöneliktir ve deneme alımını daha hızlı, daha hedefli ve daha verimli hale getirir.
Emily’s Entourage CF Clinical Trial Connect (CTC) is the only global patient database exclusively for people with CF who are unable to benefit from CFTR modulators. By joining, you can help accelerate the development of new, lifesaving CF therapies.
For Rare Disease Week, Emily will be taking the message of Emily’s Entourage to Vertex Pharmaceuticals in Boston, Massachusetts. She will use her story as... Daha fazla bilgi edinin
We’re up in the sky. We’re on cloud nine. We’re over the moon, and it’s all because of that incredible, unforgettable evening on December 5,... Daha fazla bilgi edinin
It all started with a small idea to expand our reach and help raise more funds… Emily’s Entourage has so many ambassadors around the country... Daha fazla bilgi edinin
Birthdays can be bittersweet around here as we love the chance to celebrate Emily and surround her with love and laughter, but we also simultaneously... Daha fazla bilgi edinin